Principles and practice in biobank governance

Sinopse

"Engaging with the pressing issues of privacy, consent, access to data, and benefit sharing, Principles and Practice in Biobank Governance draws together the latest empirical research from the UK, Europe, America, Australia and Asia to focus on these challenges. Current models of governance are critiqued, principles and policies are debated and new models and theoretical frameworks are presented in an intellectually stimulating and informative volume." "This truly international volume offers new insights from a range of disciplinary perspectives into the complex and challenging issues surrounding the governance of biobanks, and will be essential reading for policy-makers and scholars across a range of social sciences, including sociology, bioethics, law and social policy."--Jacket.